![]() They hope to bring in another $100,000 to $250,000 to grow their own organization and to help other foundations also working to improve health access for Latinos, Native Americans, and Blacks in the U.S.Įarly diagnosis is a focus for the couple because, while newborns are commonly screened for CF (it is included on the recommended uniform screening panel), some of the rarer mutations often found in minority groups can be missed. The Wrights reported using at least $35,000 of their own money to support NOAACF programs and independent health education projects this year. He was among the 600 patients who gained access to the therapy when its approval was expanded in December 2020 to cover more rare mutations. ![]() Now, Wright is treating his CF with Trikafta (elexacaftor/tezacaftor/ivacaftor), a triple-combination CFTR modulator developed by Vertex Pharmaceuticals. ![]()
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